We know as parents and caregivers, living with BBSOAS isn’t easy. Having a network that simply ‘get it’ can make a real difference. That’s why we host a variety of support groups. The groups are virtual to allow families from around the world to take part.
Zoom links are available on the Facebook parents group. They’re emailed to parents who are registered with us a few days ahead of the meetings.
Monthly virtual parents and caregivers support groups
For parents and caregivers around the world. All groups meet on the last Saturday of the month and begin at 12 pm Eastern Time (US).
We are setting up our 2026 dates and will post them shortly
Monthly dad's support group and WhatsApp group
We have an active monthly support group, as well as WhatsApp group. Each group meets the 3rd Sunday of the month and begins at 12pm Eastern Time (US).
We are setting up our 2026 dates and will post them shortly
Join the dad's WhatsApp group (only dad's/caregivers accepted).
Parents and caregivers of 18 years and older AND/OR patients 18 years and older
We recognise the challenges change as our BBSOAS children get older. Speak with parents and/or patients going through similar experiences. Each group meets quarterly and begins at 1:30pm Eastern Time (US).
We are setting up our 2026 dates and will post them shortly
Spanish-speaking parents and caregivers support group
Each group meets on the last Sunday every other month and begins at 12pm Eastern Time (US).
We are setting up our 2026 dates and will post them shortly
If you’d like to help setup or facilitate a support group in another language, reach out to carlie.monnier@nr2f1.org and we can help you with this.
Facebook groups
BBSOAS Parents Only Support Group (run by NR2F1 Foundation)