Blog posts

Last updated: February 20, 2026

A Day in the Life of Henry (Click to read each slide)
•November 18, 2021
Edith: One Family’s Story with BBSOAS
•August 9, 2022
NR2F1 Foundation is a New Member of the Rare Epilepsy Network
•April 8, 2022
2021 BBSOAS Research Update
•November 18, 2021
2022 Report on Rare Disease Genetic Testing
•October 11, 2022
First International BBSOAS Awareness Day
•November 1, 2021
NR2F1 Scientific Conference for Families Was a Success!
•May 9, 2022
2023 – The Year in Review for NR2F1 Foundation
•February 12, 2024
NR2F1 Foundation Looks Back at 2022
•January 6, 2023
2023 Million Dollar Bike Ride Fundraising for NR2F1 Foundation
•April 11, 2023

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©2021 NR2F1 Foundation. All Rights Reserved.
Registered 501(c)(3) non-profit organization
Federal ID# 83-2659721

This website is not designed to diagnose, advise or provide medical opinions, treatment or services. It is for general knowledge purposes only. Please consult a licensed medical professional with all questions and concerns regarding a medical condition.

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NR2F1 Foundation
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Pflugerville, TX 78691

ashlee.manjon@nr2f1.org

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