News & updates

Last updated: August 16, 2026

Every Diagnosis Counts
•August 15, 2025
“Don't worry that you don't know all about it, you will”
•July 31, 2025
Introducing the NR2F1 Research Advisory Council
•July 31, 2025
Tri4Albert Raises $23k for the NR2F1 Foundation!
•July 31, 2025
Q2 2024 Newsletter
•July 1, 2025
Participate in BBSOAS Research! 2025 BioRepository Dates and Locations
•April 16, 2025
A Sibling’s Perspective on Rare Disease
•April 15, 2025
Update From Our BBSOAS Full-Time Researcher Dr. Wassmer
•April 15, 2025
"My 56-year-old Daughter Has Just Been Diagnosed"
•April 15, 2025
Meet Student Volunteer Abigayle Nafus
•April 15, 2025
BBSOAS Grief, Resilience and Wonderment
•April 15, 2025
BBSOAS and Bioinformatics Analysis Discovery Update
•April 15, 2025

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Federal ID# 83-2659721

This website is not designed to diagnose, advise or provide medical opinions, treatment or services. It is for general knowledge purposes only. Please consult a licensed medical professional with all questions and concerns regarding a medical condition.

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